Burden and social support in caregivers of people with kidney disease: a systematic integrative review
DOI:
https://doi.org/10.34119/bjhrv6n2-093Keywords:
caregivers, Renal Insufficiency, social support, reviewAbstract
The task of providing care to patients with chronic kidney disease can lead caregivers to experience burden. Social support can be a strategy to assist caregivers in coping with the demands of their caregiving task. The article aimed to synthesize the evidence available in the literature on social support and burden among caregivers of adult people with chronic kidney disease. It consists of a systematic integrative review conducted according to what was proposed by Whittemore and Knalf. The databases MEDLINE, Psyco INFO, Web of Science, CINAHL, LILACS, and Scopus were searched, without restrictions on language or year of publication. Nine studies published between the years 2013 and 2022 were included. The caregivers are usually married women of working age. According to the results of the selected articles, it is suggested that social support is an important strategy to deal with the burden stemming from the caregiving task. It is concludes that social support seems to be an important resource for caregivers of people with CKD (including social support provided online). More research with higher methodological rigor is needed to shed light on the depth of knowledge on this topic.
References
Alnazly E.K. & Samara N.A. (2014). The Burdens on Caregivers of Patients above 65 Years Old Receiving Hemodialysis: A Qualitative Study. Health Care Current Reviews, 2(1), 1000–1118.
Arias R.M., Carreño M.S. & Posada L.C. (2019). Incerteza dos cuidadores familiares na doença de pacientes sob cuidados paliativos e fatores associados. Revista Latino-Americana de Enfermagem, 27, e3200.
Bardak S., Demir S., Aslan E. et al. (2018). The other side of the coin in renal replacement therapies: the burden on caregivers. International Urology and Nephrology, 51(2), 343-349.
Bellefontaine S.P. & Lee C.M. (2014). Between black and white: Examining grey literature in meta-analyses of psychological research. Journal of Child and Family Studies, 23(8), 1378-1388.
Bloomer M.J., Hutchinson A.M., Brooks L. et al. (2018). Dying persons’perspectives on, or experiences of, participating in research: an integrative review. Palliative Medicine, 32(4), 851-860.
Chan K.Y., Yip, T., Yap, D. Y. et al. (2016). Enhanced psychosocial support for caregiver burden for patients with chronic kidney failure choosing not to be treated by dialysis or transplantation: a pilot randomized controlled trial. American Journal of Kidney Diseases, 67(4), 585-592.
Chhetri S.K. & Baral R. (2020). Caregiver Burden among Caregivers of Patient Undergoing Hemodialysis in Tertiary Care Center: A Descriptive Cross-sectional Study. JNMA Journal of the Nepal Medical Association, 58(223), 148-152.
Conn V.S., Valentine J.C., Cooper H.M. et al. (2003). Grey literature in meta-analyses. Nursing research, 52(4), 256-261.
Dang D. & Dearholt S. (2017). Johns Hopkins nursing evidence-based practice: model and guidelines, 3th edn. Indianapolis: Sigma Theta Tau International.
Eslami A.A., Rabiei L., Abedi H.A. et al. (2016). Coping skills of iranian family caregivers' in caretaking of patients undergoing haemodialysis: a qualitative study. Journal of Renal Care, 42(3), 162-171.
Grapsa E., Pantelias K., Ntenta E. et al. (2014). Caregivers' experience in patients with chronic diseases. Social Work in Health Care, 53(7), 670-678.
Hoang V.L., Green T. & Bonner A. (2018). Informal caregivers’ experiences of caring for people receiving dialysis: A mixed-methods systematic review. Journal of Renal Care, 44(2), 82–95.
Intas G., Rokana V., Stergiannis P. et al. (2020). Burden and Sleeping Disorders of Family Caregivers of Hemodialysis Patients with Chronic Kidney Disease-End Stage: A Cross-Sectional Study. GeNeDis 2018, 33-40. Springer: Cham.
Kang A., Yu Z., Foo M. et al. (2019). Evaluating Burden and Quality of Life among Caregivers of Patients Receiving Peritoneal Dialysis. Peritoneal Dialysis International, 39(2), 176-180.
Ledesma A.R., Lena M. M. L., Ávila R. S. et al. (2013). Pacientes en diálisis peritoneal continua ambulatoria y cuidadores primarios: semejanzas y diferencias. Psicología y Salud, 23(2), 195-207.
Lee V.Y., Seah W. Y., Kang A. W. et al. (2016). Managing multiple chronic conditions in Singapore–exploring the perspectives and experiences of family caregivers of patients with diabetes and end stage renal disease on haemodialysis. Psychology & health, 31(10), 1220-1236.
Lindt N., Van Berkel J. & Mulder B.C. (2020). Determinants of overburdening among informal carers: a systematic review. BMC Geriatrics, 20(1), 1-12.
Lima A. G. T., Serafim W. F. L., Torres S. S. B. M. (2020). Perfil e experiências de cuidadores de crianças e adolescentes em terapia renal substitutiva. Brazilian Journal of Health Review, 3(5), 12477-12492.
Matthews M., Reid J., McKeaveney C. et al. (2020). Development of a psychosocial intervention to support informal caregivers of people with end-stage kidney disease receiving haemodialysis. BMC Nephrology, 21(1), 1-8.
Miles M.B. & Huberman A.M. (1994) Qualitative data analysis: An expanded sourcebook, 2nd edn. Thousand Oaks: Sage.
Nagasawa H., Sugita I., Tachi T. et al. (2018). The relationship between dialysis patients’ quality of life and caregivers’ quality of life. Frontiers in Pharmacology, 9, 770.
Page M.J., McKenzie J. E., Bossuyt P. M. et al. (2021). The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. International Journal of Surgery, 88, 105906.
Pereira B.D.S., Fernandes N.D.S., de Melo N.P. et al. (2017). Beyond quality of life: a cross sectional study on the mental health of patients with chronic kidney disease undergoing dialysis and their caregivers. Health Quality of Life Outcomes, 15(1), 1-10.
Sajadi S.A., Ebadi A. & Moradian S.T. (2017). Quality of life among family caregivers of patients on hemodialysis and its relevant factors: a systematic review. International journal of community based nursing and midwifery, 5(3), 206-218.
Silva W. S., Oliveira J. E. C., Oliveira J. C. R. et al. (2021). Papel do enfermeiro na abordagem da doença renal crônica: Revisão da literature. Brazilian Journal of Health Review, 4(5), 20738-20743.
Tong A., Sainsbury P. & Craig J.C. (2008). Support interventions for caregivers of people with chronic kidney disease: a systematic review. Nephrology Dialysis Transplantation, 23 (12), 3960-3965.
Tuckey N., Duncanson E., Chur-Hansen A. et al. (2022). Using an international online forum to explore perspectives of caregivers of patients with chronic kidney disease. Journal of Nephrology, 35(1), 267-277.
Usman S.H.B., Atif I., Rashd F. et al. (2017). Assessment of caregiver burden of patients receiving dialysis treatment in Rawalpindi. Jounal of the Pakistan Medical Association, 67(10), 1498–1501.
Vieira I.F.O., Garcia A. C. M., Brito T. R. P. et al. (2021). Burden and social support in informal caregivers of people undergoing kidney dialysis: a mixed study. Revista brasileira de enfermagem, 74 (3), 1-7.
Vieira C.P.D.B., Fialho A.V.D.M., Freitas C.H.A.D. et al. (2011). Práticas do cuidador informal do idoso no domicílio. Revista brasileira de enfermagem, 64(3), 570-579.
Vos T., Lim S. S., Abbafati C. et al. (2020). Global burden of 369 diseases and injuries in 204 countries and territories, 1990–2019: a systematic analysis for the Global Burden of Disease Study 2019. The Lancet, 396(10258), 1204-1222.
Wang H., Naghavi M., Allen C. et al. (2016). Global, regional, and national life expectancy, all-cause mortality, and cause-specific mortality for 249 causes of death, 1980–2015: a systematic analysis for the Global Burden of Disease Study 2015. The Lancet, 388 (10053):1459-1544.
Whittemore R. & Knafl K. (2005). The integrative review: updated methodology. Journal of Advanced Nursing, 52 (5), 546-553.
